Hello all,
I am a veteran to the Rett Syndrome community and I live in Washington State just north of Seattle.
My daughter Lindsay has been living in a home for several years that her father and I purchased and remodeled. It is a spacious rambler with a large bathroom that will accommodate a shower chair. Lindsay has had roommates and caregivers but they moved out this past summer when the care giving agency was unable to follow Dr's orders after Lindsay was hospitalized twice. Lindsay has been in the home by herself, with 1:1 care by an agency named Visiting Angels. Her health has improved dramatically and emotional health has improved as well.
We has been looking for a suitable roommate for Lindsay since the move in September. Department of Developmental Disabilities has stated they are unwilling to continue funding this level of service and Lindsay will has to move possibly next week.
Lindsay was diagnosed at 2 years of age by Dr Rett. Her father and I were Regional Reps for IRSA for several years and attended many IRSA conferences. In addition I was on the board of Northwest Rett Syndrome Foundation and served as President.
Lindsay is a petite 26 year old. She does not have seizures and can walk with help. She continues to need help with everyday activities so she has 24 hr caregivers. Lindsay loves to get out and go swimming, shopping or out to eat. Lindsay would love to share her home, a beautiful large rambler with another young woman. I think a roommate with Rett syndrome would be a perfect match.
If you are interested in discussing this further, please contact her mother, Mary ASAP
c 206 696 1098
h 425 673 06701
email mvspringer2002 @yahoo.com
Thank you so much,
Mary Springer
Saturday, December 13, 2008
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